FM :: Fibromyalgia

For Carers

To be of help the carer must believe and understand:

  • This person is ill and suffering. this is real, this Fibromyalgia
  • To seek a good understanding of Fibromyalgia, the symptoms and treatments
  • To have the time - some chronic sufferers need 24/7 care
  • Not to be afraid to ask for Help
  • Remember RESPITE we all need REST or we might need a carer

The incomplete understanding of the biological underpinnings, as well as the multiple symptoms that characterize Fibromyalgia, make it a challenging disorder to diagnose and treat. It takes time and patience to care for FM sufferers, and there are no "quick fixes." Diagnosis is made by a combination of patient history, physical examination, laboratory evaluations, and exclusion of other causes of symptoms confused with FM. Understanding the symptomology and recommended treatments will allow carers to give appropriate care, being aware of new symptoms, maintaining a good relationship with the treating physician this may include asking for referrals for multidisciplinary treatment of these complex Fibromyalgia patients.


 

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There are a number of programs which support and assist carers. There are services for carers of people with a disability (Fibromyalgia).

Planned respite gives carers a break and provides them with opportunities to pursue other activities and interests. Respite care can be provided in an emergency - for example, if the carer will be away unexpectedly. It can also be planned at regular intervals, provided in the home, and even give a carer a longer break.



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Like other chronic painful conditions, fibromyalgia may be associated with a significant amount of psychological distress. On average, people with fibromyalgia are not any more psychologically disturbed than those with other medical problems. However, a significant subset of people, perhaps those with more severe symptoms, do experience significant psychological difficulties. These problems include depression, anxiety, anger and interpersonal conflict.




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