Jenny's Story: My Life with Crouzon Syndrome
Growing Up with Crouzon Syndrome
Being an Adult with Crouzon Syndrome
Being a Mother with Crouzon Syndrome
Dealing with Unexpected Crouzon Syndrome
Helping Your Child to Cope with Teasing
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Jenny's Inspirational Sayings II
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There are many places on the Internet where you can go for information. I hope these links help.
Crouzon Syndrome & Associated Conditions Support Groups:
 | Crouzon Support Network - Yahoo groups |
| Our Faces Support Group (Australia) |
| MUMS (National Parent to Parent Organization USA) |
| CAPPS Kids Boards (Craniosynostosis) |
| Hydrocephalus Family Support Group |
Personal Sites:
| Friendly Faces |
| The Personal Side of Craniofacial Differences |
| VP Shunt Implant - it's a lifetime thing |
Craniofacial Organisations:
Hydrocephalus:
Craniofacial Hospitals/Clinics:
| John Hopkins Center for Craniofacial Development & Disorders |
| The Dallas Craniofacial Center |
Foundations:
| National Foundation for Facial Reconstruction |
| The Craniofacial Foundation of Arizona |
| World Craniofacial Foundation |
| Craniofacial Foundation of America |
Medical Information:
| Birth Defect Research for Children |
| Consumer Medical Information |
| National Institute of Dental and Craniofacial Research |
| National Organization for Rare Disorders (NORD) |
| Pediatric Neurosurgery |