Jenny's Story: My Life with Crouzon Syndrome

What is Crouzon Syndrome?

What is Craniosynostosis?

What is Hydrocephalus?

Growing Up with Crouzon Syndrome

Being an Adult with Crouzon Syndrome

Being a Mother with Crouzon Syndrome

And Baby Makes Three!

Dealing with Unexpected Crouzon Syndrome

The Team of Doctors

My Children's Operations

Photo Gallery

Helping Your Child to Cope with Teasing

Links Page

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 God Sent to Me an Angel

Praise be to God

Jenny's Inspirational Sayings

Jenny's Inspirational Sayings II

The Secret of Success

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Praise be to God

If God brings you to it, He will bring you through it.


In happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God.
Painful moments, trust God.
Every moment, thank God.

Psalm 139: 13-16

For you created my inmost being;

you knit me together in my mother's womb.

I praise you because I am fearfully and wonderfully made;

your works are wonderful,

I know that full well.

My frame was not hidden from you when I was made in the secret place.

When I was woven together in the depths of the earth,

your eyes saw my unformed body.

All the days ordained for me were written in your book before one of them came to be.

(NIV)

Dear God,

Thank you for my life and the struggles you have given me and helped me through. Lord I did not always think you were there but I realise now that you were carrying me through those tough times. Thank you God for my beautiful children and the many blessings you have bestowed upon me. Thank you also that you have chosen me to help others with facial differences. I know Lord that we are all made in your image and you don't make mistakes. Everyone is beautiful in your sight. May Your name be glorified through my life and praise be to you forever.

Amen. Jenny